I'm taking a few moments today to talk about something far off the topic of this blogs usual content. No, dolls, this is a matter of life and death.
There are certain things that, no matter who you are or where you are you feel the need to take action. That tug, that pull at your heart, that emotion is where we all pull together and we find the best part of ourselves...
Last night as i watched my local news a story came on about a little boy named Tucker. Tucker has a rare genetic disorder called Sanfilippo Syndrome, a type of MPS. There is no cure and children with this usually only live at most, to their late teens.
I sat there, watching this, thinking about my own child, and my husband and I realized..... we know this little boys mother. Her mother was my girl scout leader, we had pool parties ar her house and she was like a big sister to me when I was little. She was my husband's classmate and an all around amazing human being. And her son, a precious gift of God, needs our help.
While there is no cure, there is hope. Steps are being taken to get a clinical study underway but these things don't come cheap, typical costing upwards of $400, 000. I urge you all, especially those of you who have children, to think 'what if it was my child?'. So please, let's prove just how wonderful people can be. Share this post, share the links below, pray, donate.....do whatever you can. Maybe, just maybe, we can make a difference in not only Tucker’s life, but in all the children who also suffer from this as well.
Thank you!!
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